Monday, January 21, 2008
Sunday, January 20, 2008
Tristan and Ryland were both practicing their walking. They'd walk from the gate over to where one of us were sitting.
I've got to share this, it happened last night. Tristan was screaming in bed, so I went in and got him (looked like he was having a bad dream) and brought him in with us. He was standing on the bed, up by the headboard and my chapstick was there. He said (I'm not kidding) "Momma's chapstick" That completely blew me away! He only has a few words in his vocabulary, so this was pretty big for him.
Thursday, January 17, 2008
Tristan, Cassie and Ry are all saying a lot of words now, Mommy, daddy, kitty cat, puppy, more, cracker, bye bye, hello, hi, nana, and baby....that's about all right now. Oh, and Cassie's favorite phrase "What's that"? which comes out sound like "sssat".
FINALLY! Tricia is fully awake! She is still weak and very tired/sleepy, but her mind if fully awake! Still having a hard time focusing her eyes, and she can't do much with her hands, but we're having a much easier time reading her lips.
I just spent about an hour with her (they're doing her chest PT right now). When I arrived, she told me that she wasn't clear on where she was and why she was there. The last she remembers, she was still down on her usual hall (7800). She even though that she was in a different hospital. I assured her that she was at Duke, and spent about 10 minutes giving her the outline of the past 3 weeks.
Then, I showed her The Video of Gwyneth and we both spent some time crying tears of happiness together. We also watched a few minutes of the video of Gwyneth that my parents shot for us last Wednesday. I hadn't seen it yet as I was waiting to watch it with her. I'll be posting that video here soon.I also showed her the map of everyone who has been thinking about and praying for her, and told her that we've had about 200,000 hits and about 4000 comments since she went to sleep 9 days ago...she was as amazed as I have been.The Road Ahead is certainly not easy, but we've got this big hurdle behind us (waking up).
Gwyneth Rose is doing well. Her white blood count was up, so they sent a culture to check for an infection, and resumed her antibiotics just to be safe. Otherwise, she was sleeping peacefully when I checked on her a few minutes ago. Her CF screening should return tomorrow, and the scan of her head revealed no bleeding (can't remember if I mentioned that).Thank you so much! I'll be spending more time with Tricia today, and I'll be sure to tell you all about it. Nate
Wednesday, January 16, 2008
Nothing on Thursday....WOOHOO! We figured maybe he was gnawing on his hands (darn molars) and accidentally gaved himself. Then came Friday... Man oh man, I didn't know little bodies could store this much food. We put them to bed on Friday night and an hour later, they were still screaming, which was a little unusual. So I went upstairs to quickly check on them. I knew the moment I stepped in the room what was going on. Let's just say Mark ended his workout a bit early that night.
Into the tub both boys went. As Mark is drying Ryland off, he throws up all over the towel. Back to the tub, and this time makes it through the diaper and clothing application. He's in Cassie's crib with her (because I'm still busy cleaning their cribs, and the floor, and trying to find sheets...), and he throws up all over her crib, just barely missing his sister. Luckly, nothing got on either of them. But now I was in need of 3 sheets.
I quickly finished up his crib and put him in it-with a bucket for you know what. Cleaned up Cassie's bed and put her in it, and finished Tristan's crib just as Mark was finished with his bath. Ry threw up three more times in his crib-but he had great aim and made it into the bucket. Pretty good accomplisment for a 16 month old little guy.
When I was SURE he was done throwing up, I sat with him in the rocking chair and just snuggled him and rocked him. Tristan seemed to be holding his own at this point so I just kept him in his crib. Ohhhh the joys of motherhood, that boy threw up on me two more times, and then I required a bath.
Imagine our horror when tonight, Cassie is eating dinner and suddenly throws up. Just as I'm going to grab her out of her high chair and she throws up again. Then again, and then a little more before I have a chance to get her out of that seat. That was about 2 hours ago and she's sleeping soundly in bed right now. I just hope it stays that way. Hopefully she just choked on something which made her gag, vice having this bug the boys had.
Tuesday, January 15, 2008
Tricia is someone I "met" online. She has Cystic Fibrosis and was being evaluated for a lung transplant when they found out that she was pregnant. This put a halt to their transplant plans, as she and Nate disussed and prayed about what to do.
Ultimately they decided that they were pregnant for a reason and that terminating the pregnancy was not an option for them. As of late, Tricia has been having complications relating to her failing lungs and the added stress of a pregnancy on her body. She went under surgery a week ago to be placed on a ventilator and they decided to deliver the baby via emergency c-section at that time. The doctors thought it was a better decision than having her undergo two major procedures with her body in such a delicate condition.
Gwenyth Rose was delivered at 24 weeks+ and is holding her own in the NICU, absolutely amazing the doctors and other staff. She truely is a miracle baby. Tricia is also doing well considering the circumstances and they are slowly weaning her off of the ventilator. They are hoping that after a few months of recovery, she can be re-evaluated for a lung transplant.
If you would, please join me in keeping this family in your thought and prayers. Nate does a fantastic job of sharing their daily experiences on his blog, you can visit it at www.cfhusband.blogspot.com.